We need people living with young onset Parkinson’s to participate in a national evaluation of the Young Onset Parkinson’s Exchange (YOPX) app.
Developed as a living lab model, the experiences, ideas, knowledge, and daily needs of people with young onset Parkinson’s have underpinned all Young Onset Parkinson’s Exchange (YOPX) app and website content. More than one hundred individual stories and experiences shape our tips, tools, and resources.
The YOPX app provides a fast track for people with young onset Parkinson’s to collect and collate information relevant to their NDIS applications, planning meetings and reviews. It is a one-stop shop for information relevant to navigating a future with young onset, managing symptoms and continuing to live well with Parkinson’s.
The website also acts as a valuable workforce tool for NDIS staff and health professionals by sharing YOP stories to increase understanding of people living with young onset and the challenges they face in their daily lives. There are also resources for carers, family and friends to help them understand your new normal while also getting linked to support for themselves.
To be eligible for the study evaluation, you must:
- Be aged between 20 and 59 years
- Be diagnosed with Parkinson’s Disease by a neurologist
- Own a smart mobile device with the capacity to download the YOPX app via Google Play Store or Apple iOS App Store
- Not be participating in other research studies
- Not have used version 2 of the YOP-X app
- Comprehend English at a level sufficient to complete the study requirement
- Be able to provide informed consent.
To express your interest in the study, please contact Dr Joyce Ramos on 0435942505, or email: joyce.ramos@flinders.edu.au ((HREC 7519). If you complete the study you will be reimbursed with a gift voucher as thanks for your participation.
