The Young Onset Parkinson’s Exchange (YOPX) app and website supports people with young onset Parkinson’s. Developed as a living lab model, the experiences, ideas, knowledge and daily needs of people with young onset Parkinson’s have underpinned all app and website content.
More than 250 individual stories and experiences shape YOPX tools and resources. The app also provides a fast track for people with young onset Parkinson’s to collect and collate information relevant to assist with their NDIS applications and reviews.
YOPX & NDIS
Anyone diagnosed with young onset Parkinson’s or Parkinson’s under the age of 65 can apply for support under the National Disability Insurance Scheme (NDIS) if they meet the eligibility requirements. NDIS can help to provide funding for capacity building, capital and core support to help with increased costs from Parkinson’s in daily life.
The NDIS also helps people with disability get early intervention support. Remember, every NDIS plan varies according to the individual but will be based on your own goals, priorities and needs.
‘I love the NDIS application process on the app, I used it for my own application which was approved in four days without them needing any further information. I also use it as a checking process before I meet with my neurologist to gauge any changes.’
Female, 56 years old, diagnosed at 48
Young Onset Parkinson’s National Working Group
At project commencement, representatives with young onset Parkinson’s and their support people were sought from across Australia.
Fifteen representatives formed the YOPX National Working Group and lent their knowledge and expertise to developing project consultancy tools. They continue to lead the project through each iteration and improvement of the app and website today.
Learn more here:
Donations
Your donation helps us to achieve our core business, to improve the lives of people affected by Parkinson’s in Australia through national advocacy, raising awareness and connecting people living with Parkinson’s, their families and carers, researchers and health professionals in the Parkinson’s community.
